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Abstract
Background: Duchenne muscular dystrophy (DMD) is the most common X-linked dystrophinopathy characterized by a chronic progressive neuromuscular degeneration. Early diagnosis and interventions may delay or prevent its complications. A factor that affects prompt diagnosis is the healthcare-seeking behavior of the parents. With the ultimate goal of improving care and outcomes of patients with DMD, this study aimed to assess caregivers’ healthcare-seeking behavior in a developing country.
Methods and Results: Using a prospective cross-sectional study, factors affecting the parental healthcare-seeking behavior of patients with DMD were investigated. A total of 55 parents participated. There is delay between the mean age (4 + 2.3 years) when first symptom was noted and the first medical consult (6.6 + 2.3 years). Furthermore, there is a delay of 4.5 + 1.1 years from the symptom onset to DMD confirmation as majority opted observation and traditional medicine prior to physician consult. Upon medical consultation, multiple variables also affected arrival to a diagnosis. Facilitating factors include the first physician handling the patient doing a diagnostic evaluation or alleviating caregiver concern, a positive family history, and physical therapist or pre-school teacher recognizing the problem. Impeding factors include cultural beliefs, financial constraints, alternative diagnosis or non-action by the physician, parental non-compliance to medical advice, and family logistics.
Conclusion: The identified factors affecting prompt arrival to diagnosis should be the target of local healthcare systems as areas of development in order to translate to timely treatment and intervention and thus a better quality of life for patients with DMD.
"Parental Healthcare-Seeking Behaviors of Filipinos with Duchenne Muscular Dystrophy ", International Journal of Science & Engineering Development Research (www.ijrti.org), ISSN:2455-2631, Vol.7, Issue 7, page no.94 - 108, July-2022, Available :http://www.ijrti.org/papers/IJRTI2207015.pdf
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ISSN:
2456-3315 | IMPACT FACTOR: 8.14 Calculated By Google Scholar| ESTD YEAR: 2016
An International Scholarly Open Access Journal, Peer-Reviewed, Refereed Journal Impact Factor 8.14 Calculate by Google Scholar and Semantic Scholar | AI-Powered Research Tool, Multidisciplinary, Monthly, Multilanguage Journal Indexing in All Major Database & Metadata, Citation Generator